Showing posts with label March of Dimes. Show all posts
Showing posts with label March of Dimes. Show all posts

Tuesday, November 17, 2009

Fight For Preemies

This post is in participation of the Bloggers Unite/Fight for Preemies.

Some memories fade and some remain fresh forever. June 26th and July 17th 2006 will forever be fresh in my memory. June 26th was the day that I went into preterm labor. Being pregnant with twins I knew that it was a possibility, but I was hoping I would be one of those who carried to term. My babies were only 26wks 6days old, way too soon to be born. I was sent to my local hospital, one who tried to stop my preterm labor, but one that was not equipped to handle infants that young. I was medi flighted to a hospital 30 mins away that had all the capabilities to handle infants 26wks and younger.On July 17th after a month of hospitalized bed rest and many medications to stop contractions my babies still came early 10 weeks early.



This is me at 26wks, just days before I went into preterm labor. This is also only one of a few photo's I have of me pregnant. After this point my mind and efforts were focused on keeping my two boys inside and safe.



Kolton day 3

Karter day 3

The fear, the worry, the uncertainty. No one will every know how it feels, unless you have been there yourself. Your children very small, on all kinds machines, the sounds, the the beeping of machines the swoosh sound of the oxygen, the crying parents, the silent sick babies.

The March of Dimes is near and dear to my heart. For the March of Dimes is just one element that helped my babies live.

Our family was honored to be the Ambassador Family for our towns Walk for Babies in September 2007.

Each year after we have participated and raised money to continue the March of Dimes research and to educate those who do not know of prematurity.

Allow me to share the speech I prepared and gave as the Ambassador mom to two preemie boys.

Hello, I’m Brandy, 2007 Ambassador Mom and mother to two adorable one year old boys. I would like to thank you for the opportunity to share with you their story, their struggles and their triumphs. We are honored to be this years March of Dimes ambassador family.

Before the boys came along, I had heard of the March of Dimes I knew they helped babies, however I didn’t know to what extent they helped them or all the research they have done. Unfortunately, I would find out the hard way. In January 2006 my husband Jimmy and I found out we were pregnant, we were excited and scared. We experienced all the normal feelings a couple feels when they learn they are to become parents. On February 28, 2006 on my first doctors visit, we found out we were having twins; we were shocked and very excited. Although, we had not thought of twins we where very happy to welcome two little ones to our family. My pregnancy progressed normally with no problems until June 23, 2006. I had been really tired that day and was feeling what I thought was the babies “balling or bunching” up. I know now that they were contractions. Fortunately, I worked in my OB’s office so I was able to be seen right away. I found out that I was in fact dilating. My greatest fear had come true. I was in pre-term labor. At 26 weeks and 3 days I knew it was way too soon for my little guys to enter the world. Sure I was excited and anxious to meet them, but I wanted to do so under better circumstances. I was immediately sent to the hospital and started on medications to stop my contractions. When it was thought that the medications might not work, I was medi-flighted to a hospital that had the capabilities and equipment to handle infants that are born pre-term. After an intense 4 days on all kinds of medications to stop contractions and labor, it appeared that the doctors and the medicine had succeeded. I was however told to expect to stay on hospitalized bed rest for the remainder of my pregnancy. After 10 days in the hospital it seemed that all had calmed down and it was decided that I would be sent home with strict instructions to rest and not move around much. I did this for two days, and then I noticed that one of the babies was not moving around as much. I called my OB office and was told to come in. At that visit it was found that one of the babies was very low in the birth canal and it was best to be sent back to the hospital. There I stayed for 6 more days and then again was sent home for two days on strict bed rest. On July 17, 2006 one day shy of 30 weeks, my water broke at 5:00am I was rushed to the hospital once again that was equipped for pre-term births. I was once again given medications to stop my contractions, however since my water had broken, the doctors felt it best, for my labor to continue if the medications did not work. At 10:50 that morning the contractions intensified and I was rushed to the OR to deliver. At 11:30am Kolton Wayne, twin A was born by natural delivery. Twenty-seven minuets later at 11:57 Karter James twin b was born by c-section. I did not even get to see Kolton, but they held Karter up for me to see for a few seconds before he was whisked away to do life saving procedures on him. Jimmy and I were so scared. We knew they were small but didn’t know at that point how small. Once everything calmed down and I was recovering in my room we were told that Kolton weighted 3lbs 1oz and Karter 2lb 11oz. I was unable to see them until very late that night.


After all numbing medications wore off and I was able to stand on my own I was allowed to go by wheelchair to the Neonatal Intensive Care Unit or NICU to see my babies. When we arrived it was very late, we were required to remove all jewelry and scrub our hands up to our elbows with soap and hot water for 1 minute. We would have to do this each time we entered the NICU. The first baby I saw was Karter. He was very small and pink. He had a tiny diaper on him. As I looked him over I noticed that the cartilage in his ears were not completely formed yet, I had read about this in one of my many books about babies and what to expect about their growth at 30 weeks. He was hooked up to the ventilator which was breathing for him because his lungs where not yet developed enough to breath on his own. He had wires and tubes all over him and he was hooked up to a machine that would alarm if his heart rate went too low or too high, if his breathing slowed too much or if his oxygen saturation was too low or too high. Through all the tubes and wires I saw a beautiful baby boy that I was so in love with. Next I was taken to see Kolton who was in another room. He was tiny as well, but a bit bigger than his brother. He had dark hair and lots of it for such a tiny baby. I remember wondering how much he would have had, had he been born full term. He too was hooked up to a ventilator, due to his immature lungs, he also had tubes and wires all over him, but he had one thing different that Karter did not have. He also had the addition of a big lamp that was know as a bililight. This was being used because he was jaundice. He would have the light for a week or more. While on the light he had to wear goggles to protect his immature eyes. Because he was on the light for so long I rarely got to see his tiny little face for the first few weeks. Even though he was a strange blue color due to the lights, and even though he was hooked up to all the same machines as Karter I feel in love with him too. We began to affectionately call him our little monkey.

It was the next day that the doctors began to tell us of all the medications they were on and what to expect in terms of their care while in the NICU. On that day July 18, 2006 I heard of surfactant for the first time. The doctors explained to us what the medication was and how it worked and that our boys would more than likely be getting two doses of this. Later when we had the chance we researched exactly what surfactant was and what it was used for. That is when I found the March of Dimes website. I learned that surfactant, which is a soapy substance found in lungs is already present in full term babies and that when they take their first breath their lungs open up and the alveoli or tiny little air sacs stay open afterwards and are ready to receive each breath, however in pre-term infants, when they take their first breath their lungs open but with each exhale their alveoli or air sacs collapse making breathing harder and harder. This is also known as Respiratory Distress Syndrome or RDS. Both Kolton and Karter had this due to their prematurity. What surfactant did for my boys and for many, many preterm infants is it allowed their lungs to balance the pressure on the outside with the pressure on the inside of their lungs and remain open to incoming air. According to the March of Dimes website, surfactant began to be used in the 1980’s developed by Dr. T. Allen Merritt. Since its use the number of babies that die from RDS, has gone from 10,000 per year to less than 1,000. My boys fit into this statistic. My boys where saved not only by the doctors, but also by this wonderful discovery of surfactant, it literally allowed my boys to breath another day.

As the days went on we began to learn the ins and outs of the NICU. You are told up front that it is going to be an emotional roller coaster, and it is. Everyday is different, one day things are going good and the next something is not right. You began to think of each day as one step closer to going home. Karter spent 3 days on the Ventilator, Kolton spent two, and the next step after the ventilator is CPAP or Continuous Positive Airway Pressure. CPAP does not breathe for you like the ventilator but it does create enough pressure when you inhale to keep your airway open. Kolton spent 2 days on CPAP and Kater spent 4 days on it. After CPAP is the nasal cannula. The nasal cannula is used to provide supplemental oxygen to a patient. Kolton spent 5 days with the cannula and at 11 days old was breathing room air on his own. Karter would stay on the cannula until he came home and after being home for one month he was able to breathe room air on his own. The boys spent 48 days in the NICU, while there both received many medications to help their heart rate regulate, head ultrasounds to check for brain bleeds, many X-rays to check their heart and other organs, blood transfusions due to low blood counts and the inability of their little bodies to keep up. Light therapy for Jaundice, heel sticks to check their blood gasses. Numerous IV’s in the head, legs and arms and a scar for each of those sticks.

This has all been as described to us by the nurses in the NICU, a rollercoaster of a ride, but the end result are two beautiful boys, that to this date have no lasting effects from their prematurity, they are healthy and thriving and we are so thankful, thankful to the March of Dimes for all their research, thankful for the Doctors and nurses that played a part in their survival and thankful to you, those who donate and volunteer in the quest to save babies.

Thank you again.

Aside from slight asthma for Kolton and an undiagnosed PDA for Karter that was closed in March 2009 my story ends well, many do not.

Please consider supporting the March of Dimes.


Kolton (Baby A) at 3 years old.


Karter (Baby B) at 3 years old.


Brothers Forever

Friday, November 13, 2009

Fight For Preemies // Bloggers Unite

Fight For Preemies // Bloggers Unite

Posted using ShareThis


Since I didn't participate in the Walk for Babies this year, I decided to join the Fight for Preemies by writing a post along with hundreds of others on November 17th telling our story and what the March of Dimes has meant to us. I know most of you have heard it before however it's an important cause and one that is near and dear to my heart. Feel free to visit were you are likely to see photo's of the boys in the hospital and pictures of them now in all there three year old glory.

Monday, September 14, 2009

March of Dimes 2009


You may or may not have noticed that up until this point I have not mentioned March of Dimes this year. That's simply because I chose not to participate in the March for Babies this time, I just needed a break. The first half of the year was extremely stressful around here. We had two houses on the market(still), our funds were dwindling, we had a pregnancy, a miscarriage and a huge fire that could have and came very close to burning our house down, and we decided to leave our church because it too was stressing us out.

After all that stress and emotion I chose not to participate in the stress and emotion of fund-raising and remembering just why my children needed the March of Dimes. With all that said I still support them and I still suggest that you drop by their website to see just what it is they do.

The walk I usually participate in is on September 26, the boys actual due date, the date it's been on every year since I started. We won't be there physically this year, but I'll be thinking about it on that day.

I would like to leave you with the a link to the past two years I participated with the March of Dimes. The first year 2007, we were the Ambassador family for our town, and I wrote this speech. The second year 2008, we just fund raised and walked.

Will I do it next year? I don't know we will have to see what next year brings.

Wednesday, October 01, 2008

March of Dimes (Part 5)

The walk was last Saturday, it was a very nice morning for it, not too hot. There was a pretty good turn out. I want to once again thank all those who donated and walked with us. Thanks to my Sister, Brother-in-law, neice, my mom and my nephew for joining us.

I always get a little emotional as the walk kicks off. Of course I don't let anyone know it and I had my sunglasses on so no-one saw my tear, but it hits me at that point just how fortunate we are. 1,000 babies die each year in Oklahoma due to prematurity. I had two at the same time, I'm so thankfull our boys are not amoung the 1,000 lost each year.

Every year they have what they call a "preemie parade" where they give each preemie in attendence a medal. Kolton was so proud of his and wore it around all day. Karter didn't really have an interest in his at all, all he wanted to do was play on the swings.

Preemies are such fighters all of them even those who don't make it home with their families.

Anyway enough of that, even though I said I planned on getting lots of pictures I didn't get that many, and I'm not in any of them because I was behind the camera.

Tuesday, September 23, 2008

March of Dimes (Part 4)

We exceeded our goal! I didn't think we were going to make it, but at the last minute we pulled it off.

The actual walk will be next weekend. There will be awards, breakfast and a preemie parade. I plan to take plenty of pictures.

I want to thank you all for sponsoring us and helping me raise money for a cause I'm so passionate about.

To my Internet friends thank you so much for the past two years you have helped me by donating.

To my family I thank you as well for being so supportive and for walking with us.

To Jimmy's co-workers, it is because of your last minute donations that we met our goal. You have been nothing but kind to our family in the past two years. Thank you!


And now for some pictures.

Thursday, September 18, 2008

March of Dimes (Part 3)

Just and update and reminder that those who wish to donate to our March of Dimes fund, please do so by clicking on the March of Dimes banner on my sidebar or contact me as I need to have all monies by Sunday Sept. 21st. Unfortunately, I am sad to say that it does not seem that I will reach our goal of $300 by the turn in date of Sept. 23rd. While the March of Dimes is near and dear to me, I just don't think many people know what it does and how it helps. I encourage you to go to the March of Dimes website, read what they are all about, then I encourage you to read my previous posts on how the March of Dimes helped Kolton and Karter. A lot of people who donated last year to us seem to be unwilling this time. I understand that we were the ambassador family last year and therefore more people were willing, however that does not change what they do and how they helped in our situation. Last year my goal was $1000 I reached that, this year it is only $300. If possible please pass this post on and help me help the March of Dimes and all babies and families who may benefit from them.

Wednesday, August 13, 2008

Procedure Date Set & Then and Now Pics

We got the call yesterday that October 16 will be the date that they do Karter's procedure. I'm OK with the date, it's after our March of Dimes Walk, after Daddy's birthday and after his eye appointment on Oct. 3rd and my birthday on the 8th. We have to be at the hospital at 6:30am they will talk with us, answer all our questions, I'm assuming do some blood work and then the procedure. We may be able to go home the same day but we may end up staying overnight, it all depends on Karter and how he reacts and how quickly he wakes up. I'm sure as the date gets closer I will have more things to say about how I feel about it. For now I feel peaceful about it. I wish it didn't have to happen but I don't really feel all that worried at the moment.

Than and Now August Edition

August 17, 2006

August 9, 2007


August 13, 2008

Thursday, July 10, 2008

March for Babies Part 2

In the last part of June I posted about how it's time to get working on our fundrasing for the March of Dimes. I said I would be doing several post about it. I want to post our story, how the March of Dimes helped us. Last year we were very honored to be the ambassador family for Shawnee, this year that honor is given to a new family, one that also knows the heartache of having a preemie and all the fears that come along with that title.

I have set my goal at $300(you can donate by clicking on the purple box on the side bar). Surley with your help I can reach that goal. I ask you to take a moment to read my speech from last year and watch the video, which I am also posting on the sidebar, just click "The story of Kolton and Karter". Your life may have not been directley affected by prematurity or infant mortality, but there are tons of us who have. The March of Dimes strives to give every baby a chance. With help theres hope.

Hello, I’m Brandy, 2007 Ambassador Mom and mother to two adorable one year old boys. I would like to thank you for the opportunity to share with you their story, their struggles and their triumphs. We are honored to be this years March of Dimes ambassador family.Before the boys came along, I had heard of the March of Dimes I knew they helped babies, however I didn’t know to what extent they helped them or all the research they have done. Unfortunately, I would find out the hard way. In January 2006 my husband Jimmy and I found out we were pregnant, we were excited and scared. We experienced all the normal feelings a couple feels when they learn they are to become parents. On February 28, 2006 on my first doctors visit, we found out we were having twins; we were shocked and very excited. Although, we had not thought of twins we where very happy to welcome two little ones to our family. My pregnancy progressed normally with no problems until June 23, 2006. I had been really tired that day and was feeling what I thought was the babies “balling or bunching” up. I know now that they were contractions. Fortunately, I worked in my OB’s office so I was able to be seen right away. I found out that I was in fact dilating. My greatest fear had come true. I was in pre-term labor. At 26 weeks and 3 days I knew it was way too soon for my little guys to enter the world. Sure I was excited and anxious to meet them, but I wanted to do so under better circumstances. I was immediately sent to the hospital and started on medications to stop my contractions. When it was thought that the medications might not work, I was medi-flighted to a hospital that had the capabilities and equipment to handle infants that are born pre-term. After an intense 4 days on all kinds of medications to stop contractions and labor, it appeared that the doctors and the medicine had succeeded. I was however told to expect to stay on hospitalized bed rest for the remainder of my pregnancy. After 10 days in the hospital it seemed that all had calmed down and it was decided that I would be sent home with strict instructions to rest and not move around much. I did this for two days, and then I noticed that one of the babies was not moving around as much. I called my OB office and was told to come in. At that visit it was found that one of the babies was very low in the birth canal and it was best to be sent back to the hospital. There I stayed for 6 more days and then again was sent home for two days on strict bed rest. On July 17, 2006 one day shy of 30 weeks, my water broke at 5:00am I was rushed to the hospital once again that was equipped for pre-term births. I was once again given medications to stop my contractions, however since my water had broken, the doctors felt it best, for my labor to continue if the medications did not work. At 10:50 that morning the contractions intensified and I was rushed to the OR to deliver. At 11:30am Kolton Wayne, twin A was born by natural delivery. Twenty-seven minuets later at 11:57 Karter James twin b was born by c-section. I did not even get to see Kolton, but they held Karter up for me to see for a few seconds before he was whisked away to do life saving procedures on him. Jimmy and I were so scared. We knew they were small but didn’t know at that point how small. Once everything calmed down and I was recovering in my room we were told that Kolton weighted 3lbs 1oz and Karter 2lb 11oz. I was unable to see them until very late that night.After all numbing medications wore off and I was able to stand on my own I was allowed to go by wheelchair to the Neonatal Intensive Care Unit or NICU to see my babies. When we arrived it was very late, we were required to remove all jewelry and scrub our hands up to our elbows with soap and hot water for 1 minute. We would have to do this each time we entered the NICU. The first baby I saw was Karter. He was very small and pink. He had a tiny diaper on him. As I looked him over I noticed that the cartilage in his ears were not completely formed yet, I had read about this in one of my many books about babies and what to expect about their growth at 30 weeks. He was hooked up to the ventilator which was breathing for him because his lungs where not yet developed enough to breath on his own. He had wires and tubes all over him and he was hooked up to a machine that would alarm if his heart rate went too low or too high, if his breathing slowed too much or if his oxygen saturation was too low or too high. Through all the tubes and wires I saw a beautiful baby boy that I was so in love with. Next I was taken to see Kolton who was in another room. He was tiny as well, but a bit bigger than his brother. He had dark hair and lots of it for such a tiny baby. I remember wondering how much he would have had, had he been born full term. He too was hooked up to a ventilator, due to his immature lungs, he also had tubes and wires all over him, but he had one thing different that Karter did not have. He also had the addition of a big lamp that was know as a bililight. This was being used because he was jaundice. He would have the light for a week or more. While on the light he had to wear goggles to protect his immature eyes. Because he was on the light for so long I rarely got to see his tiny little face for the first few weeks. Even though he was a strange blue color due to the lights, and even though he was hooked up to all the same machines as Karter I feel in love with him too. We began to affectionately call him our little monkey.It was the next day that the doctors began to tell us of all the medications they were on and what to expect in terms of their care while in the NICU. On that day July 18, 2006 I heard of surfactant for the first time. The doctors explained to us what the medication was and how it worked and that our boys would more than likely be getting two doses of this. Later when we had the chance we researched exactly what surfactant was and what it was used for. That is when I found the March of Dimes website. I learned that surfactant, which is a soapy substance found in lungs is already present in full term babies and that when they take their first breath their lungs open up and the alveoli or tiny little air sacs stay open afterwards and are ready to receive each breath, however in pre-term infants, when they take their first breath their lungs open but with each exhale their alveoli or air sacs collapse making breathing harder and harder. This is also known as Respiratory Distress Syndrome or RDS. Both Kolton and Karter had this due to their prematurity. What surfactant did for my boys and for many, many preterm infants is it allowed their lungs to balance the pressure on the outside with the pressure on the inside of their lungs and remain open to incoming air. According to the March of Dimes website, surfactant began to be used in the 1980’s developed by Dr. T. Allen Merritt. Since its use the number of babies that die from RDS, has gone from 10,000 per year to less than 1,000. My boys fit into this statistic. My boys where saved not only by the doctors, but also by this wonderful discovery of surfactant, it literally allowed my boys to breath another day.As the days went on we began to learn the ins and outs of the NICU. You are told up front that it is going to be an emotional roller coaster, and it is. Everyday is different, one day things are going good and the next something is not right. You began to think of each day as one step closer to going home. Karter spent 3 days on the Ventilator, Kolton spent two, and the next step after the ventilator is CPAP or Continuous Positive Airway Pressure. CPAP does not breathe for you like the ventilator but it does create enough pressure when you inhale to keep your airway open. Kolton spent 2 days on CPAP and Kater spent 4 days on it. After CPAP is the nasal cannula. The nasal cannula is used to provide supplemental oxygen to a patient. Kolton spent 5 days with the cannula and at 11 days old was breathing room air on his own. Karter would stay on the cannula until he came home and after being home for one month he was able to breathe room air on his own. The boys spent 48 days in the NICU, while there both received many medications to help their heart rate regulate, head ultrasounds to check for brain bleeds, many X-rays to check their heart and other organs, blood transfusions due to low blood counts and the inability of their little bodies to keep up. Light therapy for Jaundice, heel sticks to check their blood gasses. Numerous IV’s in the head, legs and arms and a scar for each of those sticks.This has all been as described to us by the nurses in the NICU, a rollercoaster of a ride, but the end result are two beautiful boys, that to this date have no lasting effects from their prematurity, they are healthy and thriving and we are so thankful, thankful to the March of Dimes for all their research, thankful for the Doctors and nurses that played a part in their survival and thankful to you, those who donate and volunteer in the quest to save babies.
Thank you again.

Wednesday, June 25, 2008

March for Babies

It's that time again folks, time to March for Babies. As you may have noticed I have placed my fund raising gadget on the sidebar of my page. This year I have a lower goal quite simply because I'm not the ambassador family this year and I am not sure what kind of goal to set for my team. I chose $300. I figure surely I can raise $300, right? If I raise more that would be awesome but $300 is a nice place to start. In a few days I will be posting how the March of Dimes helped Kolton and Karter as well as some more information about the March of Dimes. This organization is near and dear to me not only for what they do, but for what they did for my boys. If you can donate it would be greatly appreciated, any amount is fine. If that's not possible, just spread the word, tell others about the March of Dimes. Knowledge is priceless and every penny counts.

It's partly because of the March of Dimes that my kids are alive and well and doing their favorite things. Like playing in the water.

Friday, August 17, 2007

March of Dimes Video

We just completed our third day of meetings for the March of Dimes. For three days now I have been taking the boys to my previous place of employment and giving my speech and they have been kissed and hugged by all kinds of nice people. This is the video that has been shown at each of those meeting. It always touches me because I know what it's like, how scared those people are. Thankfully I didn't loose one of my twins and I don't know that hurt, but there are those who do. I warn you the video is emotional. I hope you enjoy and don't forget to donate or walk in this years WalkAmerica.


Sunday, August 05, 2007

Updates-Rufus,March of Dimes and an overdue thank you.

Rufus Update: Rufus has Feline Hepatic lipidosis also known as Fatty Liver Disease. You can read some about it here. Hopefully we caught it in time. He did have to stay at the Vet's for 3 days for fluids and assisted feeding. I then picked him up and feed him at home by mouth with a syringe. I did this for a week and he did begin to eat for me somewhat on his own, then he stopped. So we decided, as his last chance, to do the Esophageal feeding tube. This tube, as I understand it, was placed in his neck with the feeding part of the tube ending at the end of the esophagus, so that the food goes into his stomach. I looked for info on this on the web, but was unable to find pictures and a description. Rufus's tube then runs from the spot of insertion on his neck, around to the back of the neck, around his ear and then at the end there is a little port that I push food through by syringe. I'm sure glad I worked at my vet clinic for 5 years, I not only have confidence in the doctor, since I worked with him, but I am not intimidated very much by what is required to care for him. He seems comfortable right now. My hope is in 4 to 6 weeks he will eat on his own and the tube can be removed and he can get on with his life.





The clear tube over his ear it part of the feeding tube.

Long over due thank you: I am embarrassed that I have not done this sooner, much sooner, but somehow it escaped me until recently. When the boy were in the NICU, the support we had was awesome, for that matter when I was on hospitalized bedrest my support was awesome. Friends and family pulled together and supported Jimmy and I to the fullest. One of those people who checked on us regularly via my dad, are a couple of friends he rides motorcycles with. They sent their kind words by my dad and it was much appreciated. One friend, Cathy P. even went so far as to make the boys these very nice blankets with cute little bugs on them and the boys names and dates of birth in the middle. I was touched to say the least, someone who had met me but not my boys had taken their time out of their day to make my little guys something so nice. Cathy I'm so sorry it has taken me so long to say thank you so much. The boys enjoy the blankets and like to scratch around on the little bugs, thank you again.





I'm not sure what Kolton has gotten on his, but I hope it comes out in the wash.



March of Dimes update: Thank you so much to those of you who have donated so far, we still are a long way off from out goal, so don't forget to donate, any amount, it all goes to help babies. I've rounded up some family members so far to have them place the little coin donation boxes at their place of employments and to their churches. I want my whole family involved somehow, all they need to do it remember why we are doing this and look at Kolton and Karter to see why I am so passionate about it.



Who could resist the two faces?

Addendum: This family needs prayers. I heard about this on the local news and thought it was an awful accident and how sad it was, then I was told today that the little boy is my aunts nephew. This was a horrible freak accident and the whole family needs your prayers.

Saturday, July 28, 2007

March Of Dimes-WalkAmerica 2007

As I'm sure everyone has read, we are the ambassador family for our town. With that huge honor comes the responsibility to help raise money so the March of Dimes can continue their research, therefore continuing to save babies.

Did you know that premature birth is the leading cause of newborn death and the biggest threat to babies health today. Prematurity can take a baby's life or compromise his or her health for a lifetime. It has reached an epidemic proportions in the U.S., endangering the lives of more than half a million babies each year. And that number is escalating.

Every year, more than 120,000 babies in the U.S. are born with birth defects. The causes of about 70 percent of these are unknown. To find answers, the March of Dimes invests millions of dollars annually to research to discover ways to prevent birth defects that can disable a child for a life time.

The March of Dimes supported advances in the treatment of premature babies, like surfactant therapy and specialized care in neonatal intensive care units(NICUs),have helped thousands of premature babies survive and thrive. Babies like Kolton and Karter who both received the life saving surfactant as well as spent 48 days in the NICU.

With that said, in the next 24 hours, more than 1,350 babies will be born too soon. Many will have to fight to survive. Some will die; others will face serious health problems like cerebral palsy, vision and hearing loss, and mental retardation. With your support, there is hope for saving future babies from premature birth.

So you see it's important for continued funds for the March of Dimes. Now that my children are thriving and growing daily, it has become my new mission to educate those, who like me, may not know that this is going on. It is very real and very important. Important to those families that are listed on my sidebar, important to mothers, fathers, sisters, brothers and grandparents. Important to those tiny little lives that lay in isoletts waiting to breath on their own, waiting to grow.

Our area will be having their walk on September 28th starting at 5:30pm. Come join us, meet us, see our boys, see what the March of Dimes helped to save. If you can't walk with us please donate, any amount is fine it all goes to save babies. I have set our goal at $1,ooo. I hope to exceed this. You can donate on line by clicking here or by clicking the sponsor me button on the top of my page. You can join our team to walk online as well. If you would like to donate the traditional way, by cash or check, let me know in the comments and I will get you my email or address or arrange to meet you somehow. I hope to see you all there!

Wednesday, July 18, 2007

My Speech

This is the speech I gave at the Kickoff meeting yesterday. Today they had the boys and my picture on the front page of the newspaper, however my picture was not too good. Of course I was talking so I looked stupid, oh well.

Hello, I’m Brandy, 2007 Ambassador Mom and mother to two adorable one year old boys. I would like to thank you for the opportunity to share with you their story, their struggles and their triumphs. We are honored to be this years March of Dimes ambassador family.
Before the boys came along, I had heard of the March of Dimes I knew they helped babies, however I didn’t know to what extent they helped them or all the research they have done. Unfortunately, I would find out the hard way. In January 2006 my husband Jimmy and I found out we were pregnant, we were excited and scared. We experienced all the normal feelings a couple feels when they learn they are to become parents. On February 28, 2006 on my first doctors visit, we found out we were having twins; we were shocked and very excited. Although, we had not thought of twins we where very happy to welcome two little ones to our family. My pregnancy progressed normally with no problems until June 23, 2006. I had been really tired that day and was feeling what I thought was the babies “balling or bunching” up. I know now that they were contractions. Fortunately, I worked in my OB’s office so I was able to be seen right away. I found out that I was in fact dilating. My greatest fear had come true. I was in pre-term labor. At 26 weeks and 3 days I knew it was way too soon for my little guys to enter the world. Sure I was excited and anxious to meet them, but I wanted to do so under better circumstances. I was immediately sent to the hospital and started on medications to stop my contractions. When it was thought that the medications might not work, I was medi-flighted to a hospital that had the capabilities and equipment to handle infants that are born pre-term. After an intense 4 days on all kinds of medications to stop contractions and labor, it appeared that the doctors and the medicine had succeeded. I was however told to expect to stay on hospitalized bed rest for the remainder of my pregnancy. After 10 days in the hospital it seemed that all had calmed down and it was decided that I would be sent home with strict instructions to rest and not move around much. I did this for two days, and then I noticed that one of the babies was not moving around as much. I called my OB office and was told to come in. At that visit it was found that one of the babies was very low in the birth canal and it was best to be sent back to the hospital. There I stayed for 6 more days and then again was sent home for two days on strict bed rest. On July 17, 2006 one day shy of 30 weeks, my water broke at 5:00am I was rushed to the hospital once again that was equipped for pre-term births. I was once again given medications to stop my contractions, however since my water had broken, the doctors felt it best, for my labor to continue if the medications did not work. At 10:50 that morning the contractions intensified and I was rushed to the OR to deliver. At 11:30am Kolton Wayne, twin A was born by natural delivery. Twenty-seven minuets later at 11:57 Karter James twin b was born by c-section. I did not even get to see Kolton, but they held Karter up for me to see for a few seconds before he was whisked away to do life saving procedures on him. Jimmy and I were so scared. We knew they were small but didn’t know at that point how small. Once everything calmed down and I was recovering in my room we were told that Kolton weighted 3lbs 1oz and Karter 2lb 11oz. I was unable to see them until very late that night.
After all numbing medications wore off and I was able to stand on my own I was allowed to go by wheelchair to the Neonatal Intensive Care Unit or NICU to see my babies. When we arrived it was very late, we were required to remove all jewelry and scrub our hands up to our elbows with soap and hot water for 1 minute. We would have to do this each time we entered the NICU. The first baby I saw was Karter. He was very small and pink. He had a tiny diaper on him. As I looked him over I noticed that the cartilage in his ears were not completely formed yet, I had read about this in one of my many books about babies and what to expect about their growth at 30 weeks. He was hooked up to the ventilator which was breathing for him because his lungs where not yet developed enough to breath on his own. He had wires and tubes all over him and he was hooked up to a machine that would alarm if his heart rate went too low or too high, if his breathing slowed too much or if his oxygen saturation was too low or too high. Through all the tubes and wires I saw a beautiful baby boy that I was so in love with. Next I was taken to see Kolton who was in another room. He was tiny as well, but a bit bigger than his brother. He had dark hair and lots of it for such a tiny baby. I remember wondering how much he would have had, had he been born full term. He too was hooked up to a ventilator, due to his immature lungs, he also had tubes and wires all over him, but he had one thing different that Karter did not have. He also had the addition of a big lamp that was know as a bililight. This was being used because he was jaundice. He would have the light for a week or more. While on the light he had to wear goggles to protect his immature eyes. Because he was on the light for so long I rarely got to see his tiny little face for the first few weeks. Even though he was a strange blue color due to the lights, and even though he was hooked up to all the same machines as Karter I feel in love with him too. We began to affectionately call him our little monkey.
It was the next day that the doctors began to tell us of all the medications they were on and what to expect in terms of their care while in the NICU. On that day July 18, 2006 I heard of surfactant for the first time. The doctors explained to us what the medication was and how it worked and that our boys would more than likely be getting two doses of this. Later when we had the chance we researched exactly what surfactant was and what it was used for. That is when I found the March of Dimes website. I learned that surfactant, which is a soapy substance found in lungs is already present in full term babies and that when they take their first breath their lungs open up and the alveoli or tiny little air sacs stay open afterwards and are ready to receive each breath, however in pre-term infants, when they take their first breath their lungs open but with each exhale their alveoli or air sacs collapse making breathing harder and harder. This is also known as Respiratory Distress Syndrome or RDS. Both Kolton and Karter had this due to their prematurity. What surfactant did for my boys and for many, many preterm infants is it allowed their lungs to balance the pressure on the outside with the pressure on the inside of their lungs and remain open to incoming air. According to the March of Dimes website, surfactant began to be used in the 1980’s developed by Dr. T. Allen Merritt. Since its use the number of babies that die from RDS, has gone from 10,000 per year to less than 1,000. My boys fit into this statistic. My boys where saved not only by the doctors, but also by this wonderful discovery of surfactant, it literally allowed my boys to breath another day.
As the days went on we began to learn the ins and outs of the NICU. You are told up front that it is going to be an emotional roller coaster, and it is. Everyday is different, one day things are going good and the next something is not right. You began to think of each day as one step closer to going home. Karter spent 3 days on the Ventilator, Kolton spent two, and the next step after the ventilator is CPAP or Continuous Positive Airway Pressure. CPAP does not breathe for you like the ventilator but it does create enough pressure when you inhale to keep your airway open. Kolton spent 2 days on CPAP and Kater spent 4 days on it. After CPAP is the nasal cannula. The nasal cannula is used to provide supplemental oxygen to a patient. Kolton spent 5 days with the cannula and at 11 days old was breathing room air on his own. Karter would stay on the cannula until he came home and after being home for one month he was able to breathe room air on his own. The boys spent 48 days in the NICU, while there both received many medications to help their heart rate regulate, head ultrasounds to check for brain bleeds, many X-rays to check their heart and other organs, blood transfusions due to low blood counts and the inability of their little bodies to keep up. Light therapy for Jaundice, heel sticks to check their blood gasses. Numerous IV’s in the head, legs and arms and a scar for each of those sticks.
This has all been as described to us by the nurses in the NICU, a rollercoaster of a ride, but the end result are two beautiful boys, that to this date have no lasting effects from their prematurity, they are healthy and thriving and we are so thankful, thankful to the March of Dimes for all their research, thankful for the Doctors and nurses that played a part in their survival and thankful to you, those who donate and volunteer in the quest to save babies.

Thank you again.

Tuesday, July 17, 2007

Happy 1st Birthday Kolton and Karter!

We made it. At times it felt like we wouldn't but we did and it just keeps getting better from here. I have a whole bunch of stuff to update on. First not only was it the boys birthday today, but it was also the kickoff meeting for the March of Dimes in my area. I gave my speech today, got my information for WalkAmerica and will be setting up my sites there soon. On the March of Dimes site you will be able to donate to the March of Dimes. When I get it set up I will post a link and more information to where your money goes and how you can help.

First off I can't believe in just one short year we went from this

Karter 3 days old

Kolton 3 days old

To this.

1 year old

This, as I have said before has been the most happiest, saddest, loneliest, overwhelming year of my life. I had no idea the amount of suffering and heartache Jimmy and I would endure. I had no idea of the number of premature babies or babies with birth defects where born on a day. I have seen first hand as I'm sure others of you out there have witnessed the sadness that goes on in the NICU. Fortunately and Praise God my story has turned out to be a positive one, but many are not and I have witnessed those. I am glad that I am aware of it now, it gives me the dedication I need to work with the March of Dimes, but on another level I wish I had the naivete that I had before I went through all this. It is not easy knowing that everyday babies are born too soon and may die or have to endure an amazing struggle all before their due date. This can happen to anyone, which is the hardest to understand. I did everything I was supposed to do during my pregnancy, however my body could not handle the stress of twins and had stretched to the max, thinking I was at full term and resulting in my boys being born too early. I'm not as sad about it as I used to be, time has healed Jimmy and I a little, but every now and then I will see a scar or a picture and it all comes back. The feeling of anxiety, worry and uncertainty.

Boy I sure am glad that year is over, now bring on the terrible twos.

I have more things add, like the speech I gave today and the boys one year update, but it will have to wait until later. It's late and we had a very busy day so off to bed I go.

Thursday, July 05, 2007

Wagons,Cookies and March of Dimes..

I have a little bit more information on the March of Dimes stuff. The kickoff meeting will be on July 17th, the boys birthday. I will be giving a speech basically telling our story and I will also bring along a story board with pictures and such. Kolton and Karter will be there as everyone wants to see them and see how well they are doing. Jimmy will be coming along as well. Then sometime in September, not sure of the date just yet, I think the 28 or 29th there will be a walk, which we will be raising money for, I'll let you know more about that as it gets closer and I know more.


Now for some pictures. We had a nice fourth. We had family over and cooked out and played with the wii. The boys had fun getting so much attention and got to stay up an hour past their bedtime. We did not however take them to see fireworks, they where too sleepy and just wanted to go to bed, maybe next year. Earlier in the day Nanny brought over their birthday present because she is going out of town the week of their party and birthday. They really liked their gift and they will have lots of fun with it for years to come. We have planned thier party for the 14th of July and I sent out invites today.

Tonight after dinner I let them have their first Oreo cookie and they loved it, they both ate the whole thing.

Kolton

Karter

Tomorrow we go for their one year old pictures. Hopefully they will turn out good, and the boys will corporate.